Arthrogryposis is a condition of multiple joint contractures present at birth. Arthrogryposis translated from the Greek literally means "curved or hooked joints."
Freeman-Sheldon syndrome (FSS), also termed, distal arthrogryposis type 2A (DA2A), craniocarpotarsal dysplasia (or dystrophy), "whistling face-windmill vane hand syndrome", is a rare form of multiple congenital contracture (MCC) syndromes (arthrogryposises) and is the most severe form of distal arthrogryposis. Features include: talipes equinovarus, camptodactyly, scoliosis, ocular abnormalities with regard to the musculature involved, microstomia, high arched palate, attenuated movement of facial musculature, and various other primary anomalies involving, but limited to, the musculoskeletal systems.
These groups, communities, or meeting places provide an opportunity for people with a common experience (such as a condition or disease, or a care-giving role) to share their concerns, and to seek and offer information and advice.
Sites listed here will represent support networks with a physical address and/or a web presence. Those with a physical address may also be submitted to the relevant Regional subcategory.