Related categories 2
Beckwith-Wiedemann Syndrome Support Group
Group providing information on this condition, a letter from Dr Beckwith, stories, tips and details of new research.
British Porphyria Association
Support organisation for people with any of the seven variants of porphyria.
Climb Congenital Adrenal Hyperplasia UK Support Group
Provides support for those with CAH, as well as their families, and raises funds for research. FAQs, information pack, publications, events, and stories.
Cushing's Syndrome Support Group (Yahoo!)
UK forum for those with 'Cushing's Syndrome' - a hormonal disorder caused by prolonged exposure to high levels of the hormone cortisol. Yahoo! registration required.
Edinburgh Myalgic Encephalomyelitis Self Help Group
Edinburgh-based ME Self Help Group (MESH) for those with ME, as well as their families and carers. Events, meetings, postal library service, quarterly newsletter, plus forum and members-only pages.
An independent, international, non-governmental organisation dedicated to improving treatment and understanding of the causes and effects of bipolar disorder ('manic-depression').
Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.
Hop Skip and Jump
Bristol-based day care and supervised play for children with special needs and their families. Includes facilities - serves all of South West England.
Jonny Kennedy North East
Providing support for Epidermolysis Bullosa sufferers and their carers. News, events and community forum
The Mental Health Foundation
Charity improving the lives of those with mental health problems or learning disabilities. Research, service development and information to increase understanding.
SIBS: For family siblings of people with special needs
Support for brothers and sisters of those with special needs, disabilities or chronic illness. Fact sheets, workshops and conferences, plus training for professionals.
Charity to support people with disabilities and life-shortening diseases, their families, carers and friends, offing care at home or in residential centres. Information on its services and chain of shops.
Verity 'PCOS' Self Help Group
For women whose lives are affected by Polycystic Ovary Syndrome. Events diary, facts-sheets, web-links and discussion forum.
Last update:October 13, 2016 at 7:05:04 UTC