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See also:
  • Genetic Alliance Group - Information about this umbrella group of organisations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
  • Joubert Syndrome in the UK - Support group for families of children affected with Joubert Syndrome.
  • PiXiE - Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
  • The Williams Syndrome Foundation - Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.
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Last update: April 24, 2015 at 10:57:00 UTC - edit