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  • Alliance of Genetic Support Groups - National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
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  • Chromosome Disorder Outreach, Inc. - Non-profit patient advocacy organization. Support and information provided for those affected by rare chromosome disorder.
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  • Cornelia de Lange Syndrome (CdLS) Foundation Outreach - Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
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  • GendersInX.org - Support and encouragement for people with congenital gender variations.
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  • S.O.F.T. - A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
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  • Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) - Provides literature, conferences, newsletter, chapter information, and international contacts.
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  • Trisomy 18 Foundation - Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
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  • Unique Rare Chromosome Disorder Support Group - Support and information for families of children with rare disorders.
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  • Yahoo Group - ATR-X - Offers support for individuals caring for others affected by Alpha Thalassemia Mental Retardation Syndrome.
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  • Yahoo Group - CMT Support - Message board concerning Charcot-Marie-Tooth Disease.
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  • Yahoo Group - Floating Harbor - Forum for the parents and families of children with Floating Harbor Syndrome.
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  • Yahoo Group - Myotonic Dystrophy 2 - A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
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Last update: May 21, 2016 at 0:54:03 UTC - edit