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  • Alliance of Genetic Support Groups - National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
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  • Chromosome Disorder Outreach, Inc. - Non-profit patient advocacy organization. Support and information provided for those affected by rare chromosome disorder.
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  • Cornelia de Lange Syndrome (CdLS) Foundation Outreach - Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
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  • Distal Trisomy 10q Families - Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
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  • GendersInX.org - Support and encouragement for people with congenital gender variations.
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  • Ideas - A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
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  • Peter's Anomaly Support Group - An online support group for people dealing with Peter's Anomaly.
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  • S.O.F.T. - A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
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  • Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) - Provides literature, conferences, newsletter, chapter information, and international contacts.
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  • Trisomy 18 Foundation - Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
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  • Trisomy 18 Moms - Lists Trisomy 18, Edwards syndrome memorial site, help making a website, and share a story.
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  • Unique Rare Chromosome Disorder Support Group - Support and information for families of children with rare disorders.
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  • Yahoo Group - ATR-X - Offers support for individuals caring for others affected by Alpha Thalassemia Mental Retardation Syndrome.
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  • Yahoo Group - CMT Support - Message board concerning Charcot-Marie-Tooth Disease.
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  • Yahoo Group - Floating Harbor - Forum for the parents and families of children with Floating Harbor Syndrome.
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  • Yahoo Group - Myotonic Dystrophy 2 - A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
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Last update: June 16, 2010 at 6:50:43 UTC - edit