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Conditions and Diseases
Open Directory - Health: Support Groups: Conditions and Diseases: Facial Differences: Craniosynostosis
Health: Conditions and Diseases: Musculoskeletal Disorders: Congenital Anomalies: Craniosynostosis
- Group started by a mother and father looking for information on craniosynostosis. Offers fun, friends and craniosynostosis support. Includes a forum and blog.
Jorge Posada Foundation: Craniosynostosis
- The foundation aims to raise awareness of this congenital defect and provides families and affected children with emotional support and financial assistance.
Parents of Children with Craniosynostosis (PCC)
- Offers information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah.
The Craniofacial Group - Paris, France
- Craniofacial Group; Management of anomalies of skull and face : craniosynostosis, facial clefts, hypertelorism, tumors and trauma.
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