In Partnership with AOL
See also:
  • AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
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  • Acne Support Group in Cyberspace - Support group and forum for anyone with acne to visit, discuss, share treatments, provide support and move through the stressful event of having acne.
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  • The AmeriFace Circle of Smiles - Webring community for families whose lives have been touched by cleft lip and palate and other craniofacial anomalies.
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  • Beneath the Surface - Offers support and understanding to individuals with facial differences. Includes the founder's story and encourages others to share their experiences.
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  • Birthmark Support Group - UK-based charitable organization provides information about birthmarks, how to get help, treatment centres, newsletters, diary of events and links to other associated support groups.
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  • Changing Faces - UK charity that supports, represents and campaigns for people who have disfigurements of the face or body.
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  • Children's Craniofacial Association - Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
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  • The Craniofacial Society of Great Britain and Ireland - Information about the society, which is a multidisciplinary forum for specialists.
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  • Crouzon Support Network - Provides information and support for people affected by Crouzon Syndrome and related craniofacial anomalies. Includes FAQ, newsletter, events and online support.
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  • The DRM WebWatcher: Facial Differences - A Disability Resources monthly guide to online resources about craniofacial differences.
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  • FACES: The National Craniofacial Association - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
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  • The Facial Pain Association - Aims to serve as an advocate for patients living with trigeminal neuralgia and related facial pain conditions by providing information, encouraging research and offering support.
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  • Foundation for Faces of Children - Expert information for families and health care professionals about craniofacial conditions.
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  • Goldenhar Family Support Group - Aims to support families throughout the UK who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems.
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  • Headlines - Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.
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  • Johns Hopkins Center for Craniofacial Development and Disorders - Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
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  • Moebius Syndrome Foundation - Non-profit organisation that aims to provide information and support to individuals with Moebius syndrome and their families. Includes resources, news and articles and information on support groups, events and research.
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  • The Personal Side of Craniofacial Differences - Personal accounts of living with craniofacial conditions, and related webrings.
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  • Sincere Meditations - Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
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  • Support Works Online - Resources to find or form support groups related to facial difference. Information on medical research.
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  • TRPS Support Group UK - Provides information and support to those with trichorhinophalangeal syndrome and their families. Includes information on the condition, patients’ stories and a forum.
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  • XP Support Group - UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
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  • Yayasan Senyum: The Smile Foundation - Non-profit organization supporting the delivery of health care to people with craniofacial disabilities, in particular children with cleft lip and palate in Bali, Lombok, Java and other areas of Indonesia.
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Last update: February 21, 2014 at 6:45:06 UTC - edit