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See also:
  • DebRA International - Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
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  • Cristina's Castle in the Clouds - Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
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  • DebRA Canada - Includes articles, news, and information about this genetic disorder.
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  • DebRA of America - Offers information, news, newsletters, support, and resources.
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  • DebRA UK - Features organization background, information about the disorder, fundraising and research details, and news.
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  • EB Info World - Information, mailing list, pictures, and help for new parents.
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  • EB Medical Research Foundation - A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
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  • Epidermolysis Bullosa - Through the Eyes of a Patient - A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition.
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  • International EB Forum - Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
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  • Yahoo! Groups: EBworld - Mailing list support group for parents, patients, and those interested in learning about disease.
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  • The girl whose skin never heals - The BBC reports on Sohana Collins, who has never known a day without pain. She has a rare genetic disorder that means her skin, internal and external, blisters and tears at the slightest friction. (November 29, 2013)
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  • ‘Butterfly’ Churchill brothers die of infections - The BBC reports on the death of two brothers with ‘butterfly skin’. (March 18, 2013)
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Last update: November 29, 2013 at 20:23:42 UTC - edit