Dercum's disease, Dercum disease, Adiposis Dolorosa, Morbus Dercum, Adiposita Dolorosa, Fettvävsreumatism, painful fatty tumors, lipomas, weakness, obesity. This category is about a disease that has been identified for over a hundred years, yet no recent research exists on the cause of it. It was originally named by Dr. Francis X. Dercum in 1892 as adiposis dolorosa. It has since picked up his name as an identifier and both names seem to be equally popular. It generally occurs in women (less 16% are men), between the ages of 25-40 (in Sweden) or 40-65 (in the USA). They cite obesity as a cause, but they have it backwards -- the disease actually causes the obesity -- and weight reduction efforts have little effect on the pain or the obesity. Two articles has attributed it to an autosomal dominant genetic disease, but there is no explanation why it can be benign in some and so debilitating in others. There is no cure, and no easy way to diagnose that a person has this disease. The key(s) are painful fatty deposits (benign lipomas, either encapsulated or diffuse), where the pain has been evident for three (3) months or more. All treatments are palliative -- treat the symptoms -- ease the pain, suction out (via liposuction) or excise the more painful tumors (remember they are benign), and counsel the patient to be able to endure the never-ending pain. Research into the cause or the stimulus that worsens the disease is needed.
Related categories 2
Article: Corticosteroid-Induced Juxta-articular Adiposis Dolorosa (Dercum'sDisease)
Article copied from the Archives of Dermatology discusses a case of Dercum's Disease in the knee that was apparently caused by corticosteroid usage.
Brorson/Fagher article on Dercum's Disease or Adiposis Dolorosa
This is an article by Drs. Brorson and Fagher on Dercum's Disease. The first part of the article is a biography of Dr. Dercum followed by a detailed description of the disease.
Describes the disease and provides links to other sites.
Discusses the symptoms, personal stories and research that has been done in the study of this disease.
Dercum's Disease or Morbus (Mb) Dercum
Information from the Swedish Dercum's Society, courtesy of Dr. Fagher, one of the current experts in the disease. (English, Swedish)
eMedicine: Adiposis Dolorosa
Provides an overview of diagnosis and clinical features.
Learning About Dercum Disease
A National Human Genome Research Institute overview, with links to clinical research.
Describes the disease and suggests a possible dietary treatment.
Personal account of one individual living with Dercum's Disease, and the path she took to diagnosis.
Wikipedia - Adiposis Dolorosa
Offers a descriptive article of this rare disease, also known as Ander's disease or Dercum's disease.
Yahoo! Groups: Dercums Disease
Discussion board provides a means of sharing experiences and ideas.
Dercum's Disease - a frequently overlooked disease picture
German researchers present a case report describing methods used to treat the pain associated with this disease -- an overview article by Dr. Johann Steiner. (February 01, 2002)
Last update:April 11, 2014 at 14:11:40 UTC