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  • Ben's Dream - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
  • Children's Medical Research Foundation - Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
  • Frankiepants - Personal site about a child with this disorder. Provides details about the condition.
  • Jonah's Just Begun - The parents of Jonah Weishaar, who has the rare genetic disease Sanfilippo Syndrome, are setting up the Foundation to Cure Sanfilippo to undertake research into the condition.
  • The Sanfilippo Children's Research Foundation - Canadian based charitable group founded by the parents of Elisa Linton.
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Last update: July 15, 2010 at 20:59:41 UTC - edit