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Cholesterol and Other Fats
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Patient UK: Refsum’s Disease
- Factsheet on this disorder of fatty acid oxidation, its description, pathogenesis, presentation, other features, differential diagnosis, investigations, management, complications and prognosis.
- Information sheet on this disease as to what it is, the symptoms, treatment and research being done.
Yahoo! Group - Refsum Disease Support Network
- E-mail based discussion group for people with this disorder and their families for sharing experiences, coping strategies and dietary tips.
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