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Conditions and Diseases
Nutritional and Metabolic Disorders
Cholesterol and Other Fats
Health: Conditions and Diseases: Genetic Disorders
Health: Conditions and Diseases: Neurological Disorders: Brain Diseases: Metabolic
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Ara Parseghian Medical Research Foundation
- About this foundation whose goal is to find a cure for the devastating Niemann-Pick Type C disease.
GeneReviews: Niemann-Pick Disease Type C
- Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
International Center for Types A and B Niemann-Pick Disease
- Provides information on the prevention and treatment of this disorder for patients, physicians and scientists.
International Niemann-Pick Disease Alliance
- An alliance of non-profit support organisations who are associated with the rare group of genetic diseases known collectively as Niemann-Pick Disease.
- Niemann-Pick Disease Type C public awareness campaign in honor of Jacob Quinn DeMeis. Includes information on the disease and on Jacob's short life.
National Niemann-Pick Disease Foundation
- Provides in depth education and support for patients and families. Also information about the foundation itself.
Niemann Pick Patients
- UK charitable organisation offering support and information to families affected by Niemann-Pick diseases and to associated health and social care professionals.
- Information sheet on this disease including what it is, treatment, prognosis and research being done.
Think Again Think NP-C campaign
- Aiming to reduce the time to diagnosis by supporting healthcare professionals who are unfamiliar with NP-C to recognise the key signs and symptoms of the disease.
“Our bid to raise awareness of our son’s disease”
- The BBC reports on a campaign to raise doctor’s awareness of Niemann-Pick type C. (February 28, 2015)
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