Health Conditions and Diseases Neurological Disorders Spinal Cord Spinocerebellar Degenerations Friedreich's Ataxia
An autosomal recessive disease, usually of childhood onset, characterized pathologically by degeneration of the spinocerebellar tracts, posterior columns, and to a lesser extent the corticospinal tracts.
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Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
Friedreich Ataxia Research Association
Summarises recent progress in ataxia research and the search for better treatment.
Friedreich's Ataxia Fact Sheet
A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Friedreich's Ataxia Parents Group
With advice for new parents on the disease, and on how the parent might better cope emotionally.
Friedreichs Ataxia Society Ireland
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
NORD: Friedreich's Ataxia
Offers the synonyms, a general discussion and further resources.
Not Going Quietly
A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
Swiss Association of Friedreich Ataxia
Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
Patient loses right-to-food fight
The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life. (August 08, 2006)
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Last update:March 24, 2014 at 21:45:42 UTC