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International Rett Syndrome Foundation
- The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
NINDS Rett Syndrome Information Page
- Information on treatment and prognosis.
- Forum and online support group sharing personal stories and information.
Rett Syndrome Association UK
- National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.
Rett Syndrome Fact Sheet
- An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).
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