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  • International Rett Syndrome Foundation - The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
  • NINDS Rett Syndrome Information Page - Information on treatment and prognosis.
  • Rett Angels - Forum and online support group sharing personal stories and information.
  • Rett Syndrome Association UK - National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.
  • Rett Syndrome Fact Sheet - An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).
  • The Sarah Varon Foundation for Rett Research - A family dedicated to finding a cure. Find announcements, photos, and an overview of the disease.
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Last update: Sunday, December 20, 2009 6:05:01 AM EST - edit