Health Conditions and Diseases Neurological Disorders Muscle Diseases Muscular Dystrophies Support Groups Chats and Forums
These are online communities or meeting places which provide information and support to members sharing a common experience such as a condition or disease, or a care-giving role. Message boards, mailing lists, chat rooms and moderated forums may be found here.
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Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
Christians With Duchenne Muscular Dystrophy
Mailing list for Christians who have Duchenne Muscular Dystrophy.
DMD Support List
Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy Support eGroup
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
FSH Friends Forum
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
FSH Muscular Dystrophy
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
Limb Girdle Muscular Dystrophy
Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
MDA All the Way
Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identified neuromuscular diseases.
The Muscular Dystrophy Forum
An online support group for people affected by any neuromuscular condition.
Myotonic Dystrophy 2
Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
PROMM (Proximal Myotonic Myopathy)
Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
Last update:January 2, 2007 at 16:35:10 UTC