The musculary dystrophies are a group of diseases characterized by progressive degeneration and/or loss of muscle fibers that result in loss of muscle strength. All or nearly all of them have a hereditary origin but details of the type of genetic defect and of the prognosis for the disease vary from type to type. Duchenne muscular dystrophy is the most common form, though there are at least 6 other forms of the disease. Several million people throughout the world have a form of muscular dystrophy. In the United States, it is estimated that 250,000 suffer from a form of muscular dystrophy.
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Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
Duchenne/Becker Muscular Dystrophy
Includes key facts and animated slide shows of causes, diagnosis and treatment.
General Practice Notebook: Duchenne Muscular Dystrophy
A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
National Registry for Myotonic Dystrophy & Facioscapulohumeral Dystrophy
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
NHS Choices: Muscular Dystrophy
Provides a short video on living with this condition and details of symptoms, causes, diagnosis, treatment and prevention.
NINDS Muscular Dystrophy Information Page
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
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Last update:June 1, 2016 at 2:48:57 UTC