Broadly speaking, the word "ataxia" simply means unsteadiness and clumsiness, and has been given to the condition because those are usually the earliest symptoms. As the disorder progresses, people with ataxia usually lose the ability to walk, and can become totally disabled, having to depend on others for their care. This is because ataxia destroys both nerve and muscle cells. Vision (and in some cases hearing) and speech may also be affected.
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A-T Children's Project
A clearinghouse for ataxia-telangiectasia information, including disease information, scientific research, clinical and family support, and fundraising.
Action for A-T
Raising money for medical research that might help children with Ataxia-Telangiectasia (A-T) to live a longer and healthier life.
ADCA-Association of The Netherlands
With information about the association, contact details for other ataxia associations. [Dutch and English]
Ataxia Telangiectasia Society
Details about the organization which is committed to helping, supporting and advising families affected by AT. Includes research, support and awareness.
Charity offering help and support for people suffering from Friedreich’s and cerebellar ataxia. Information on the disease, treatment and research.
National Ataxia Foundation
Information about and support for people with ataxia.
NHS Choices: Ataxia
Provides information on this condition that causes a loss of physical co-ordination. Includes a short video and details of symptoms, causes, diagnosis, treatment and complications.
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Last update:July 31, 2014 at 7:05:07 UTC