Health Conditions and Diseases Musculoskeletal Disorders Connective Tissue Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome is a connective tissue disease, affecting collagen. Joints are very flexible and skin is loose and fragile.
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Ehlers-Danlos National Foundation
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
"China Doll" Syndrome
Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
Diagnose-Me: Treatments: Prolotherapy
Some EDS patients have obtained excellent results with prolotherapy treatments.
The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
A Syrian patient gives a personal plea for better medical support and research.
Ehlers-Danlos Syndrome Medical Information
Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, and pregnancy considerations.
Ehlers-Danlos Syndrome Support Group
This site offers information for patients and doctors, plus links.
Electronic Textbook of Hand Surgery
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
eMedicine - Ehlers-Danlos Syndrome
Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
Hypermobility & Fibromyalgia Support Site
Offers information and support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
NORD: Ehlers-Danlos Syndrome
Information about EDS from the National Organization for Rare Disorders.
Oral Manifestations of Ehlers-Danlos Syndrome
EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
Sandy Simmons' Connective Tissue Disorder Site
Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
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Last update:March 16, 2016 at 20:33:14 UTC