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  • Ehlers-Danlos National Foundation - American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
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  • "China Doll" Syndrome - Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
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  • Arthritis Insight-EDS Tips for Surgery - If you or a family member with EDS needs surgery, read this and share it with your doctor.
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  • Diagnose-Me: Treatments: Prolotherapy - Some EDS patients have obtained excellent results with prolotherapy treatments.
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  • EDS Today - The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
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  • Ehlers Danlos Foundation of New Zealand - Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
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  • Ehlers-Danlos Hope - A Syrian patient gives a personal plea for better medical support and research.
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  • Ehlers-Danlos Syndrome Medical Information - Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, and pregnancy considerations.
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  • Ehlers-Danlos Syndrome Support Group - This site offers information for patients and doctors, plus links.
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  • Electronic Textbook of Hand Surgery - Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
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  • eMedicine - Ehlers-Danlos Syndrome - Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
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  • Hypermobility & Fibromyalgia Support Site - Offers information and support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
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  • The Hypermobility Syndrome Association - HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.
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  • NORD: Ehlers-Danlos Syndrome - Information about EDS from the National Organization for Rare Disorders.
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  • Oral Manifestations of Ehlers-Danlos Syndrome - EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
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  • Sandy Simmons' Connective Tissue Disorder Site - Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
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Last update: December 18, 2014 at 6:54:05 UTC - edit