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  • Rob’s Story: Living with Von Hippel Lindau - Rob describes how this autosomal dominant condition affects his life.
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  • Von Hippel-Lindau Disease - Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
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  • Von Hippel-Lindau Family Alliance - Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch]
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Last update: December 18, 2013 at 0:19:35 UTC - edit