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See also:
  • Angelica - A mother's story of how she diagnosed Shwachman syndrome before a team of doctors could.
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  • Curran Family Website - A family with two children affected by Shwachman-Diamond syndrome. Includes information about the condition and on support groups.
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  • GeneReviews: Shwachman-Diamond Syndrome - Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
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  • Katie's Journey - Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
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  • NORD: Shwachman Syndrome - Offers a general discussion, the synonyms and further resources.
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  • Shwachman-Diamond America - Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
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  • Shwachman-Diamond Syndrome Family/Friends - An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.
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  • Shwachman-Diamond Syndrome International - Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
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Last update: July 30, 2012 at 8:05:05 UTC - edit