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Conditions and Diseases
Health: Conditions and Diseases: Rare Disorders
DermNet NZ: Proteus Syndrome
- Factsheet with an overview, signs, symptoms and management.
NORD: Proteus Syndrome
- Offers synonyms, a general discussion and further resources.
Proteus Syndrome Foundation
- Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
Proteus Syndrome Foundation UK
- Charitable organisation that supports and educates families and professionals about this condition and raises money for research.
Teens First for Health: Proteus Syndrome
- Factsheet on this extremely rare congenital disorder, its causes, features, diagnosis, treatment and when to seek medical help.
Woman's 11-stone legs may be lost
- The BBC reports on a Lancashire woman's campaign to raise awareness of a condition which has left her with 11-stone legs. (May 03, 2007)
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