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  • Australian MPS & Related Diseases Society - Informs and support those affected, directly or indirectly by a mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
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  • Canadian Gene Cure Foundation - The CGCF supports excellence in core human genetics research and aims to raise funds to enable scientists to discover cures and treatments for genetic disorders. Find details about the programs and events, and contact information.
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  • Dana's Angels Research Trust - Information from this charitable organization on Niemann-Pick Type C disease and how individuals can contribute funds for research for this fatal childhood disease.
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  • Genetic Alliance Group - Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
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  • Hereditary Disease Foundation - Information about this non profit organization, news, newsletters, recommended reading and contact details.
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  • Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. - Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public.
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  • ISMRD: The International Advocate for Glycoprotein Storage Diseases - Nonprofit organization whose mission is to advocate for families and patients affected by one of the glycoprotein storage diseases. Includes information, newsletter, personal stories and support.
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  • Lysosomal Diseases New Zealand - Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
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  • Telangiectasia Self Help Group - Provides several factsheets and a newsletter.
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Last update: November 17, 2012 at 22:13:33 UTC - edit