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Conditions and Diseases
Fragile X Syndrome
Open Directory - Health: Conditions and Diseases: Genetic Disorders: Fragile X Syndrome
Health: Conditions and Diseases: Neurological Disorders: Chromosomal
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- Personal story of a family living with Fragile X Syndrome.
Conquer Fragile X, Inc.
- Creating a virtual research center in Israel to find a cure.
FRAXA Research Foundation Home Page
- Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
Fragile X Association of Australia
- Information on this disease, medical aspects, education, references, contacts and what's new in Australia
Fragile X Association of Southern California
- Aims to promote public awareness, to support scientific research and to provide a forum for families of children with this disorder to meet and share their ideas, concerns and problems.
Fragile X Research Foundation of Canada
- Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
Genetics of Pregnancy Encyclopedia: Fragile X Syndrome
- Types, clinical signs, special properties of the Fragile X gene and genetic testing services available.
Kiran’s Story: Living with Fragile X
- A mother tells of her son's condition, the information she was given at the time of his diagnosis and the importance of sensitivity in tailoring genetic information and services to clients’ culture, knowledge and language level.
Living with Fragile X
- One family's account of raising 3 children with Fragile X.
Maryland Fragile X Resource Group
- A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
Online Support Group
- Support group for Family's who are dealing with Fragile X Syndrome.
- Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
The National Fragile X Foundation
- Features information about the disease, its treatment, and inheritance.
Fragile X Syndrome
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