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Top: Health: Conditions_and_Diseases: Genetic_Disorders: Cystic_Fibrosis
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Sites submitted to this category must provide educational information on Cystic Fibrosis for patients, their families and caregivers.
Technical articles for patients should be submitted to /Research.
Websites designed for the education and training of medical professionals and providers should be submitted to the appropriate category in Health/Medicine/.
English-only sites. Information in other languages should be suggested to the appropriate category in World/. more information (editors only) |
Cystic Fibrosis is an inherited disease of the exocrine glands, affecting the pancreas, respiratory system, and sweat glands. Usually beginning in infancy, it is characterized by chronic respiratory infections, pancreatic insufficiency, and susceptibility to heat prostration.
Cirrhosis of the liver, occurring in childhood, is common and may produce portal hypertension, splenomegaly, and hypersplenism.
Information found here includes research and testing; organizations involved in support, information or research; support groups; fundraising foundations and events; conferences, camps, and centers.
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Sites submitted to this category should provide information about camp programs for individuals with Cystic Fibrosis.
Programs encompassing more than one disability or illness (e.g. lung disease, learning disabilities, etc.) should be suggested to Recreation: Camps: Special Needs.
English-only sites. Information in other languages should be suggested to the appropriate category in World/. more information (editors only) |
Camps for people of all ages with Cystic Fibrosis.
These include day, respite, and residential (overnight) programs. Many camps also provide programs for family members of those living with an illness or disability. Some camps offer year-round activities; some have only summer and/or holiday programs.
Universities, hospitals and clinics that specialize in Cystic Fibrosis care.
Annual and semi-annual conferences and meetings to discuss Cystic Fibrosis.
Sites where the main purpose is to promote a fund-raising event.
News releases on recent developments and treatments.
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This category contains sites for organizations, associations, and societies which provide support and information or are involved in Cystic Fibrosis research projects.
Sites for foundations which provide funding for CF causes should be suggested to the /Fundraising subcategory.
English-only sites. Information in other languages should be suggested to the appropriate category in World/. |
Groups that provide information on Cystic Fibrosis (CF) or work together on research.
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Site where the major intent is to memorialize someone who had Cystic Fibrosis. |
No category description found
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All sites or pages submitted to this category may be more technical in nature, but must contain information of use to patients, their families, and caregivers.
Websites designed for the education and training of medical professionals and providers should be submitted to the appropriate category in Health/Medicine/.
English-only sites. Information in other languages should be suggested to the appropriate category in Support Groups
Sites in this category serve the support needs of people with Cystic Fibrosis, their families and caregivers. Testing
Information related to testing (diagnostic, gentic and others) for Cystic Fibrosis.
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