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  • Adult Congenital Heart Association - Information, resources and support for adults with congenital heart disease.
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  • Congenital Heart Disease Information and Resources - Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.
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  • The Charlie Ramsey Research Fund - Set up to raise money for research for complex congenital heart defects. Read Charlie's story, fund raising details, and new.
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  • CHD Awareness Day - The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
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  • CongenitalHeartDefects.com - Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, list of support groups and hospitals.
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  • Fontan Operation - Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
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  • Grown Up Congenital Heart Patients Association (GUCH) - Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
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  • HLHS Information - Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
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  • International Society for Adult Congenital Cardiac Disease - The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.
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  • MedicineNet: Congenital Heart Disease - Detailed look at the causes, symptoms, types, and treatments.
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  • Merck Manual: Congenital Cardiovascular Anomalies - Overview of congenital anomalies of the heart and blood vessels with information on a number of different birth defects.
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  • Miami Children's Hospital - Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
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  • Our Little Braveheart - Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
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  • Prenatal Diagnosis of Heart Problems - UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups.
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  • Resources from California State University - Very list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
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  • Coping with Congenital Heart Disease in Your Baby - Article with some useful information, published by The American Academy of Family Physicians. (April 01, 1999)
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Last update: December 16, 2013 at 6:15:05 UTC - edit