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Conditions and Diseases
Health: Conditions and Diseases: Genetic Disorders
Health: Conditions and Diseases: Rare Disorders
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Alex and Matt Pearl
- Personal stories of two children fighting Fanconi Anemia.
- Yahoo list group for Diamond Black Fan Anemia sufferers.
- Yahoo list group for sufferers of this condition.
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
- Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
Fanconi Anemia Research Fund
- To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
Fanconi Anemia Web
- An informational site for this disorder.
- Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
- Read how Markita Worthy celebrated her 31st birthday, having Fanconi's syndrome for 29 of those years. Also offers information about this rare disorder and links to further resources.
Kaps for Kendall
- In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
- The Kendall and Taylor Atkinson Foundation (KATA) raises funds to support scientific and medical research of effective treatments and a cure for Fanconi anemia
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