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  • Author Susan May - Mother of a son who was born with congenital heart disease and received a heart transplant before he turned two has written a book about the experience. Find articles, a reading list and information about transplantation.
  • Carson's Heart Page - Dedicated to a child who had surgery for congenital disease.
  • Children and Heart Disease - The normal heart, defects, heart murmurs, kawasaki disease, treatment, school programs and feeding an infant with congenital heart disease. Information provided by the American Heart Association.
  • Experience Journal - Pediatric Heart Disease - Features stories and personal experiences from families about what it's like to live with their children's heart disease.
  • Hypoplastic Left Heart Syndrome - Parent's personal account of her child's illness and surgery. Includes links, diagrams and information about the condition and the Norwood surgery.
  • Little Hearts - Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities.
  • Rush Children's Heart Center - Provides tutorials about cardiac disorders, diagnostic tests and the normal heart for health professionals, parents and children. Includes illustrations, animations and movie clips to aid learning.
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Last update: Monday, August 29, 2011 7:09:48 AM EDT - edit